
As of lately, there have been a number of topics that I have either heard other bloggers writing about or have come across things that have triggered thoughts and questions. I think one of the biggest topics that have been rattling around this brain is friends (or lack there of) within the Diabetes community. It is funny that I chose this topic to blog about because it seems that others within the community are on the same page (or at least reading the same book.) Now, I must preface this with something. I am not talking about all my friends and acquaintances on the net, I am talking about a live body that you can see, touch and just hang with.
I have been in Kansas now for almost 5 years now and I have a very select group of friends that I get together with now and again shoot the s*&t with. While this is all good, there is another part of my life that is very lacking in this department. I am sure you know what I am talking about: friends with Diabetes. In my 30 years of living in California (prior to moving to Kansas), I have / had a large group of friends but I was never very active or focused on my Diabetes. Because of that, I never bothered to pay attention to what was going on in the Diabetes community. Now, since moving to Kansas and meeting my wife, I have taken a very active role in my Diabetes. Because of this, I realize how much I missed out on while living in the San Francisco Bay Area. It is such a mecca of Diabetes activity. Conferences, conventions focus groups and most of all, people just getting together with others who are dealing with Diabetes like I am. Up to this point, Kansas feels very void of this kind of interaction and people (or at least they keep to themselves.)
I think what gets to me the most is the seeming lack of involvement of the Diabetes population in this area. Granted, there is the ADA in the area and I see for the upcoming walk, that there are individuals out there who do care, it just seems that no one is willing to take the initiative to stir things up and get people meeting, talking and just generally aware that there are many of us out there that are dealing with the same day to day issues that they are.
I guess I am just tired of seeing and hearing about all these great focus group, meeting, conferences and just people with Diabetes, getting together to talk and hang out, regardless of whether they talk about their Diabetes or not. You have these amazing individuals such as Amy Tenderich , Many Hernandez, Allison Blass Gina Capone, Kerri Marrone Sparling, Mollie Singer and Bernard Farrell (just to name a few) in theri area who really make an effort and bring out the best in us Diabetics. Something in them just pulls others with Diabetes to them and bring a focus and awareness to the community to bring them together. Every time I hear about a conference, a meeting, a focus group or just a get together between Diabetics, it give me great pleasure to know that people are not letting the disease control their life; They are making it a part of theirs. At the same time, it makes me a sad, upset and a little bit lonely because I don’t feel that same type of community here. In the back of my mind, it makes me wish, just a little, that I was back living in the Bay Area again.
Now, I am not the type of person that the people I mentioned previously are. They seem to have a calling for this and I commend them for it. I am just another person, who is living with Diabetes and wants to see a sense of ownership of this disease by my community. I know that they are out there. Unfortunately I just don’t feel that there is the desire to make something happen. This is why I feel that I need to do something to at least bring DiabeticsĀ in this community together.
I have seriously thought about trying to start my own focus group and hopefully lite a fire under the ass of the Diabetic community to get together and share their likes, dislikes, experiences and friendships. Like I said before, I am not the type to be the leader of a march or the planner of an event but I am just getting tired of not seeing enough bonding between the community of Diabetics. I feel like I will just end up sitting in the background and watch everything go by if I don’t change something. So, as much as I feel out of my element doing so, I am going to see about trying to get a focus group or some kind og gathering / event. Nothing extravagant, just something so that people can get together, shoot the breeze and talk about things that other people, people who don’t have to live with Diabetes can’t understand. I figure the best way for me to do this is to make an effort to meet as many people at the Walk at the end of this month as possible. See if I can get some interest and hopefully begin to bring the Diabetic community in the Kansas City area out of hibernation.
Now after reading this post back, this was kind of a downer post. I didn’t intend it to be. I guess this was just kind of festering and needing to be brought to the surface. If any of you out there have any suggestions, I am all ears.












I don’t think your post was a downer. I think it’s inspiring, and I think you are absolutely right…
That being said, when can we meet? I’m in Overland Park. Let’s plan something! I wanted to go to the Step Out event, but I’ll be traveling that week.
You know where to find me. Let’s make it happen. I need support, I need inspiration. We all do.
Bea
September 10th, 2008
Chris, I don’t think the post is a downer either. It’s just a reflection of the reality that goes along with managing a chronic disease.
I’ve often felt very much alone since my DX in March of 2005. So, while I’m relatively new to all of this, I feel like I’m pretty much on my own. My wife is very supportive regarding meal planning etc. While my wife and kids are supportive, at the end of the day, I’m the only one planning my exercise in relation to my eating or MDI’s. I’m the one with the bruises from MDIs or the sore finger-tips from all the testing.
I think a large part of our isolation comes from the fact that we don’t have a limb hanging off of us or are bleeding out of our ears. The fact that it’s an ‘invisible’ disease to most makes it fall from their minds or more likely, it just gets caught up in the every-day routine of living.
I have searched for support groups here in the Milwaukee area to no avail. There have been sporadic groups here and there over the years I have found out, but they seem to peter-out after a while. I just want to find folks like myself who are still fully ambulatory, still have all their limbs etc. No offense, but I don’t want to hang out on the Diabetes floor at the hospital just to find ‘my own kind’. I don’t identify with those folks and hope to god I never will.
I enjoy reading your posts about every day life.
Take care,
Corey
Corey
September 11th, 2008
My Endo clinic is located in our Trauma/Teaching hospital. They started a new support group and the first meeting was last night. I figured I had to go considering all the pissing and moaning I was doing about the lack of same.
Anyway, there were two dudes there (me being one). The other was not all there and very nice, but very elderly. The rest were middle-aged or very aged woman. Most were Type 1’s. I know, I know….I’m being too picky…but I really am looking for folks I can relate with. Not that I have to relate to a dude etc., but at least someone in my age range and active in sports or bike riding etc.
To their credit, they did start a group. They can’t control who shows up, right?
We’re going to have them every other month and each will have a guest speaker as well as networking time. My NP is running the group. She is the greatest. She’s a diabetic as well, so she instantly connects with everyone and has that instant credibility with the attendee’s, you know?
I’ll keep going. Hopefully as word spreads, more folks will attend. There were about 20 of us.
Later gators,
Corey
Corey
September 12th, 2008
Sweet man. Glad to hear that the wheels are turning in your area. Keep up a positive look on it. It was only the first meeting. Hopefully it will expand and more people your age will start filtering in. Keep me informed. I am going to need ideas when I start a group here.
Thanks again for sharing.
Later man.
Chris
September 12th, 2008
Chris, here’s a link to the calendar/agenda for this new group - for the next year. Nothing too new or exciting on the agenda, but maybe will spark some ideas for you.
http://www.mcw.edu/endocrinology/DiabetesNetworkSupportGroup.htm
Corey
September 12th, 2008